So, fast forward to February of this year, all blood tests were negative for signs of cancer, so no fine needle biopsy was done, and at that point it was just a simple goiter, and was supposed to simply have a partial right side lobectomy, and after a couple weeks return to work and life goes on. Several of my siblings make fun of me and say I am hiding but dont even know what Graves disease is and I was not around them and did not share my health issues until recently with them. If you find that your TSH is high or that your free t3/free t4 is low, then this may be the cause of your symptoms. Some people also feel flushed. IM HAVING A HARD ENOUGH TIME WITH WHAT I TAKE NOW! There's no medical indication to support this as a benefit, and as we mentioned above, excess iodine could cause much bigger problems in the long run. The study followed people for 26 years after two or more treatments. To hide grays, try rhubarb root in two cups of water, simmer, strain, and pour over hair. This was published id a study by dr brunelli fro. Warm shades on cool undertones can make you look washed out or dull. My question is what if I do radiation while my thyroid isnt hyperactive? I had severe and sudden weight loss along with many other troubling symptoms. I will know more in a few days when he has all the pathology reports back etc. Also I drink 100 ounces of water plus other hydrating fluids and food per day. But why would you want to restore thyroid function to your thyroid gland if you had it destroyed because you were already producing too much? 1-2 Capsules of Leptin Resistance RX daily https://www.restartmed.com/product/leptin-resistance-rx/. If possible, its always ideal to try and normalize your weight BEFORE the procedure. Therefore, it may be found in varying amounts in all food and beverages. People who do have hyperthyroidism tend to have a fast metabolism, but the treatment for hyperthyroidism (the medication you are taking) slows down the metabolism dramatically which leads to weight gain. What are you concerned about? non dairy spreads such as Vitalite, Pure and non dairy Flora. Before you or any family members have RAI treatment, it is strongly recommended that you read up on post-RAI guidelines and speak with your healthcare providers about how they should be applied to you. Its not vain at all! It can also help to diagnose and treat some other cancers and conditions. If I have all of these symptoms and have had levels increase so much, is it worth seeing another dr due to my history or do you think this is normal? Currently they have me on a combination of 100mcg Synthroid with 1 Grain of Armour (60mg. 2. More important than how the procedure works is how it will affect you afterward. Im worried more about loosing my hair than my life. I have been on bioidentical hormone replacement therapy for 3 years now and feel somewhat better. Hey! Radioactive iodine is a procedure that is often used to treat hyperthyroidism. What should I do after this treatment to restore my metabolic functioning and gut biome? The problem is that once you destroy your thyroid gland you are no longer considered to be hyperthyroid. Receiving intravenous iodinated contrast (iodine "dye") may also cause hyperthyroidism. It targets VEGFR, BRAF, and RET tyrosine kinase and inhibits the proliferation and angiogenesis of cancer cells. My doctor has changed my meds 5 times I was doing better if my medication was a little on the high sideI had started to lose wait, had more energy & the best ever NO SWEATS, but she said no, WHY! I would recommend touching base with your doctor to see if its related to your procedure or if its caused by something else. Will destroying your thyroid gland have long-term consequences? I was experiencing heart palpations, diffuclty breathing while lying down, weight gain. Here is my story: A year ago I felt a bump on the right side of my neck, so on a routine follow up visit with my PCP for diabetes, I mentioned it to him. Your article is quite interesting. So, now my doctor told me a list of things to expect over the next while. You can expect to live a fairly normal life after radioactive iodine treatment but your life will probably not be exactly as it was before your procedure. Thank you! 8PM HS snack and VS and glucose readings. Radioactive iodine. If contrast dye is used, you may feel some effects when the dye is injected into the IV line. I was wondering can I color my hair at a salon. My symptoms include very dry skin, heart problems, severe pain, muscle problems, joint issues, sometimes brain fog, hair is brittle and dry, constipation, stomach issues, basically nothing is right since the treatment. While you cant control this side effect 100%, you can do your best to mitigate (or reduce) any weight gain by going into your procedure at a normal and healthy weight. Free androgen index was :24.21(24-104) and endocrinologist said RAI didnt work I dont understand how thyroid levels goes up after RAI treatment 21.04.2017). If you fit into this category then you may not need to use thyroid medication afterward. Society of Nuclear Medicine & Molecular Imaging. Repeat the process if necessary. But if you're having radiation to the head and neck area and experience hair loss, it's best to wait a few months after your hair has grown back. No social life, have to check VS and glucose readings so often. The trip will be about 45 minutes each way. Severe reactions occur in 0.04% to 0.02% of people receiving contrast, with a death rate of one person in every 170,000. Radioactive iodine (often abbreviated RAI) is a therapy used to treat hyperthyroidism and thyroid cancer. Alpha Lipoic Acid (ALA) and Thyroid Health: Is it Safe to Use? I am in the military, stationed in Fl. You wouldnt want to use a steroid on it unless you know what it is. It Depends on These Factors, Add Back Therapy for Graves & Hyperthyroidism: When to use Levothyroxine, Hashimotos and Hyperthyroidism: Why it Happens & What it Means, How to Prevent Thyroid Surgery and Radioactive Iodine Ablation Therapy | Dr. Osansky and Dr. Childs. Please help me what to do with this. As I am not a doctor, my specific question is why does the level of levothyroxine I require change if my thyroid was destroyed? best army base in germany is dr abraham wagner married is dr abraham wagner married The other 20% may require additional testing and the use of other thyroid medications which contain T3 thyroid hormone. All rights reserved. After that they again were having the same symptoms. One doctor wants a monitor of pulse five times daily, hes concerned about para thyroid damage. I would recommend that you read this article for more info: https://www.restartmed.com/normal-thyroid-levels/. After Your Radioactive Iodine Treatment Getting home. Hello Dr .Child and seriously lethargic?! Radioactive iodine therapy is a type of internal radiotherapy treatment for thyroid cancer. Radioactive iodine works by taking advantage of the physiology in your body (1). It probably wont be an issue if you left but you wouldnt want to find yourself in a situation where you are unable to get your thyroid medication and your symptoms are poorly controlled. First off, why am I so tired? It is worth pointing out, however, that some other tissues can take up the radioactive iodine such as the beta cells in your pancreas (2) though it isnt clear how much damage exists (if any) in these other cells. I fall backwards with no explanation other than car exhaust in my air space, with some injuries as a result. Your TSH should always drop as you increase your thyroid dose and you should aim to get that TSH around the 1.0 range (which is considered normal in healthy adults). Center for Hormonal Health and Well-Being, Information for patients administered radioactive iodine (I-131), Fact sheet: guidelines for patients receiving radioiodine I-131 treatment. Keep Your Distance. Thinning hair. I dont feel like I have gone back hyper after being off my meds for 4 weeks. If it was, then you will most likely need to start thyroid medication relatively soon (within the next days to weeks). My last blood test shows TSH of 0.02 and I have been asked to go for a follow up test. Radioactive iodine treatment. It turns out that thyroid hormone is actually necessary to not only thrive in life but also to survive. Use disposable dishes and place them in a specially marked plastic bag for disposal. Tips for Eating and Cooking While on a Low Iodine Diet. The best course of action is to contact the doctor that was responsible for your procedure and let them know about your symptoms. American Thyroid Association. 20 Get my free thyroid downloads, resources, and PDFs here. https://www.restartmed.com/product/t3-conversion-booster/ So, do your research, make sure RAI treatment is right for you. The only other condition that causes heat intolerance that comes to mind is menopause and perimenopause. Contrast distinguishes, or "contrasts," between organs, tissues, bones, or blood vessels during your imaging exam. I still have to work a few more years, so Im looking and applying for other jobs that arent as stressful, that are day shift Mon-Fri, with weekends, holidays and nights to myself. Thank you. Generally, yes. Should you expect to live a normal life afterward? Is there specialist out there that can look at your overall health history and help you get a regime that is right in regard to everything that is going on with you, i.e. This is an FDA and EMA approved drug used for the treatment of thyroid cancer refractory to radioactive iodine treatment, renal cell carcinoma, and hepatocellular carcinoma. Radioactive iodine can also show whether cancer has spread beyond the thyroid. So, I ate what I could and left the rest. I hope this post is still active. Iodine (chemical symbol I) is a chemical element. My endocrinologist said RAI didnt work I need surgery or second RAI treatment my other hormone results was :FSH 5.3(1.5-12.4)LH:8.8(1.7-8.6) menopause etc. Radioactive iodine (RAI) is a treatment that uses radiation to treat thyroid cancer. We know that that still leaves lots of options if your heart isn't already set on a color. So, I need to have an exercise program, vitamin and minerals that may help, food intake regulated to progress to increasing bone mass and weight loss. June 10, 2022 . Most people who get radioactive iodine treatment do so because they are considered to be hyperthyroid (sometimes people get RAI for thyroid cancer (5) but most people get it for hyperthyroidism). I can barely eat . Like the effects of chemotherapy, hair follicles and new hair are more delicate and prone to . Reply. Hi, Dr. Westin ChildsI had Graves disease and had the radioactive iodine treatmentyour information was so good to read..weight gain is becoming an issue I just watch what I eat and exercise as much as I can I also have osteoporosis but managing well so far Thank you so much for your information. Because it is entirely possible to only destroy a portion of your thyroid gland and not the entire gland. Because of this, people may experience symptoms that may lead them to want to restore whatever thyroid function they can. The interesting part was the B12 level was normal at 737 but methylmalonic acid slightly high(319) and homocysteine at 13.9. I don't practice medicine anymore and instead specialize in helping people like YOU who have thyroid problems, hormone imbalances, and weight loss resistance. Can You Get Everything Your Thyroid Needs From Food? If you are unable to avoid direct or indirect contact with infants and young children, ask your healthcare provider about the possibility of hospitalization. This is of particular concern because this can lead to internal uptake with the radioactive iodine then accumulating in their thyroids. Many thanks in advance for any help. What will you really expect after your RAI, side effects In regards to diets that can help, please see this article: https://www.restartmed.com/hypothyroidism-diet/. Im 60 years old, so its not like Ive got a full life ahead of me, not a big deal. Youll still need to get those but the supplements can be used in addition to them. Papillary and follicular thyroid cancers develop from follicular cells, which absorb iodine. that I need doesnt come in one pill so Im taking 100 mcg one day and 75 on the other. Consuming excess iodine: If you're at risk for hyperthyroidism and consume too much iodine (through your diet or medications), it can cause your thyroid to produce more thyroid hormone. is this a side effect of this proceedure. It turns out, which should come as no surprise, that medications are not a 100% complete substitute for the activity that your thyroid gland does on a day-to-day basis. Five years later I was diagnosed with a severe case of Graves and the doctor said RAI was the best course of action and convinced me of that. It is what it is. Here are 4 ways you can get more help right now: #1. Radiation can be measured around your body and I-131 is present in your skin oil and sweat. I had RAI treatment nearly 2 years ago, and deeply regret it. I had the motto: Ive never met a stranger, they are just the friends I havent met yet. Now, I would rather not talk to anyone, and if Im forced to, I keep it to bare minimum. I tend to have a high heart rate when I exercise it goes up to 130 righ away then may go as high as 174 at harder workouts. My entire life has been turned upside down. I had RAI about 39 years ago and every year Im tested for my TSH level which always seems to be in the normal range. Radioactive iodine treatment is a therapy that your veterinary surgeon may recommend if your cat is diagnosed with hyperthyroidism. It doesnt appear that the first treatment was sufficient to destroy the hot nodules (or there is some other issue). This shouldnt stop you from trying natural therapies (as long as they are relatively inexpensive and not harmful) but you should have reasonable expectations as you do so. I am worried the medication or added T3 (Armour)is making that happen and it could be hurting my heart. You get it in liquid or pill form. What can I be looking at regarding weight gain. I am already over weight and working on losing it. You are very welcome, I hope you find the information helpful! SPECT/CT scan can contribute to establishing a final diagnosis in patients being evaluated for atypical locations of radioactive iodine accumulation after ablative doses of radioactive iodine, distinguishing between metastases from DTC and false positive accumulations or artifacts. Whatever touches your skin will pick up a small amount of radiation. I wish I had found it weeks ago, but I didnt so I have to move on. I was tested in 6 weeks and my thyroid numbers were still high so I was not tested again until Feb. 2019. My Dr. stated that my MTHFH enzyme is blocked indicating a genitic issue. SHBG :43 (16-55) the tests after 3 weeks showed my TSH to be 12.920 and now she wants to increase the meds to 175.